My mom and I stayed in a lovely hotel last night near the hospital specifically so that we could walk there (parking is a cluster!) but it was too cold to walk this morning. The hotel had a van so we hitched a ride to the hospital. I had an 11:30 MRI appointment and we got there early around 11:10. By the time I registered, found the MRI suite, had my IV started, had the MRI, and met back up with my mom it was 1:10! My aunt and uncle met us after the MRI and we went to my doctor's office. UNC Hospital is several hospitals (general, women's, children's, cancer, neuroscience) all joined together by a long walkway. It is quite impressive. We got to Dr Ewend's office for my 1:30 appointment early and waited and waited and waited to see him. We then had to get some copies of my MRI to take with me. My mom and I were driving away from the hospital at 4:30. What a loooong day.
My visit went well. I am not really sure what I was expecting going into today's visit but I am not surprised with how it turned out. There is about 2 x 2 x 2 cm of tumor left. I started with a tumor that was almost 4 x 4 x 4 cm. The tumor has been downgraded from "large" to "small to medium". Dr Ewend gave me my options: watch and wait, radiation, surgery. I am a candidate for all three options but he thinks that I will eventually have to do either radiation or surgery. I am personally more of a fan of surgery because I am young and it seems that I hopefully have a lot of years left and radiation has about 20 years of data--not long term data on patient outcomes. Each option has a list of pros and cons. Meanwhile, I have been feeling that my life is "on hold" waiting for today's appointment, and I don't want for my life to be "on hold" in anticipation of another major surgery--i.e. continuing to watch and wait sounds tedious.
So I am going to pray, eat chocolate, drink wine, and sleep on it. There is no hurry to make a decision this time, which is fabulous but also makes the decision a little bit more challenging.
I am eternally grateful today and every day for the support that y'all have given me. I am so very grateful for my family, my friends, my coworkers, and my UNC healthcare team--I could never feel as brave as I have without everyone's support!
Custom made trophy compliments of my cousin Johnny. Still sitting on my dining room table!
I am so glad that you got some clear answers today. I can only imagine the anticipation and worry about this visit that you have felt over the past weeks and months. I am grateful that the doctors were able to get enough of the tumor out that is has been downgraded to a smaller category too! P.S. The trophy is awesome! What a sweet and lighthearted gift.
ReplyDeleteThanks Claire :)
DeleteI'm grateful for you, Cathy. Praying for strength and wisdom for a solid decision. 💜
ReplyDeleteThanks Becky :)
ReplyDeleteCathy - are are so strong! Maybe the strongest of all of us! Love you!
ReplyDeleteThanks Emily!
ReplyDeleteI am grateful for you as well! Continual thoughts of brightness and good things to come. Love the trophy..well deserved.❌⭕️
ReplyDeleteBest trophy ever!!! I am so happy everything went well.
ReplyDelete